genderbitch:

carnivaloftherandom:

terajk:

abbyjean:


Several German nursing homes have fake bus stops outside to keep patients from wandering; they wait for nonexistent  buses until they forget where they wanted to go, or agree to come  inside.
And Beatitudes installed a rectangle of black carpet in front of the  dementia unit’s fourth-floor elevators because residents appear to  interpret it as a cliff or hole, no longer darting into elevators and  wandering away.
“They’ll walk right along the edge but don’t want to step in the black,”  said Ms. Alonzo, who finds it less unsettling than methods some  facilities use, bracelets that trigger alarms when residents exit.  “People with dementia have visual-spatial problems. We’ve actually had  some people so wary of it that when we have to get them on the elevator  to take them somewhere, we put down a white towel or something to cover  it up.”

for people interested in this technique, i strongly recommend reading the, um, spirited discussion of the fake bus stop technique that appeared on FWD last year. these techniques basically boil down to intentionally deceiving people with disabilities, often for the benefit and convenience of their caretakers. that made me feel a little uncomfortable about them, and reading Amanda’s comments really helped me clarify my own thinking on these issues. an excerpt:

Just imagine getting out of there and wondering if every bus stop, every part of the outside world is just a ruse built to keep you from getting out of an institution. That’s the kind of mindfuck this stuff creates. And to create such a mindfuck in someone who has trouble reasoning is all the worse. People who already have reason to doubt their senses don’t need to be given more reason. At least restraints on your body are honest. It’s the shackles they put on your mind that are the worst and the hardest to recover from.

i’m not sure that’s how i react to all of these proposed measures, but it definitely highlights how slippery the slope is in approving of deception of PWDs for the benefits of caretakers and people without disabilities and draws into question why we think it’s ok to trick this group, but would reject a similar intentional deception for other groups.

Yes to all of this.
I also have visual-spatial problems, and am wary of narrow stairs or “high-up” things in general. (I’m very careful with down-escalators). Not being sure if you’re going to fall is very anxiety-provoking. To see caregivers doing this to PWD for their own convenience (“some people [are] so wary of [the fake cliff black carpet] that when we have to get them on the elevator to take them somewhere, we put down a white towel or something to cover  it up”) is just…WHAT.

I’d like to ask everyone commenting about how awful this is: Have you ever been a caregiver of someone with dementia? If not, STFU. It’s not about convenience, it’s about safety. My grandmother, whom we cared for at home for 6 years, would wander out of the house. She broke her hip and gave herself a concussion, because she missed the slight step out of the front door. She would routinely get out of soft restraints, and clamber out of her hospital bed, leading to injury, because for a while, she also had a catheter in, and she would pull it out. She developed seizures because of the Alzheimer’s, and had diabetes, high blood pressure, and balance problems. She also, due to terror induced by the audiovisual hallucinations she had as the Alzheimer’s progressed, became violent. She attacked me with a kitchen knife, and could very well have injured HERSELF.
Trying to prevent people with dementia from wandering off, is is NO WAY, about convenience. When people with dementia wander off, they often end up dead. So, please - if you haven’t ever had to care for a person with dementia, do your fucking research. This isn’t a trick, for the convenience of carers, or staff, this is a safety measure, and it’s one that tries to be minimally disruptive to the person with dementia. Rather than trying to convince them of reality, which is often extremely distressing for them, if they have lucid periods, or putting them in restraints, these measures create boundaries that let the person restrain themselves. 

Even with it being for safety, this is still hugely problematic. Messing with the mind of the mentally ill or someone with dementia, for ANY REASON is screwed up and the ethics of it are very suspect.
You’re making their grasp on reality even more difficult to maintain when you do this and it has a level of cruelty to it that is not okay. I know that I would respond very badly to people attempting to take advantage of my mental disabilities and mental illness to control me and it would certainly impact how I handle the world.
I won’t paint every method like this with a broad brush but to assume that this is ethical just cuz it boosts safety? No. Not even remotely okay. Lots of horrible things boost safety. That is lazy thinking.

I’m both against this and for this, probably because i’m into neuro, specifically with studies done on Alzheimer’s patients. And this probably wasn’t a legitimate study, but the information found through it is fascinating. Babies will do the same thing, you see, avoiding a black space on the floor because they think it’s a hole. It’s just interesting how the mind works in that more progressive stages of Alz.

genderbitch:

carnivaloftherandom:

terajk:

abbyjean:

Several German nursing homes have fake bus stops outside to keep patients from wandering; they wait for nonexistent buses until they forget where they wanted to go, or agree to come inside.

And Beatitudes installed a rectangle of black carpet in front of the dementia unit’s fourth-floor elevators because residents appear to interpret it as a cliff or hole, no longer darting into elevators and wandering away.

“They’ll walk right along the edge but don’t want to step in the black,” said Ms. Alonzo, who finds it less unsettling than methods some facilities use, bracelets that trigger alarms when residents exit. “People with dementia have visual-spatial problems. We’ve actually had some people so wary of it that when we have to get them on the elevator to take them somewhere, we put down a white towel or something to cover it up.”

for people interested in this technique, i strongly recommend reading the, um, spirited discussion of the fake bus stop technique that appeared on FWD last year. these techniques basically boil down to intentionally deceiving people with disabilities, often for the benefit and convenience of their caretakers. that made me feel a little uncomfortable about them, and reading Amanda’s comments really helped me clarify my own thinking on these issues. an excerpt:

Just imagine getting out of there and wondering if every bus stop, every part of the outside world is just a ruse built to keep you from getting out of an institution. That’s the kind of mindfuck this stuff creates. And to create such a mindfuck in someone who has trouble reasoning is all the worse. People who already have reason to doubt their senses don’t need to be given more reason. At least restraints on your body are honest. It’s the shackles they put on your mind that are the worst and the hardest to recover from.

i’m not sure that’s how i react to all of these proposed measures, but it definitely highlights how slippery the slope is in approving of deception of PWDs for the benefits of caretakers and people without disabilities and draws into question why we think it’s ok to trick this group, but would reject a similar intentional deception for other groups.

Yes to all of this.

I also have visual-spatial problems, and am wary of narrow stairs or “high-up” things in general. (I’m very careful with down-escalators). Not being sure if you’re going to fall is very anxiety-provoking. To see caregivers doing this to PWD for their own convenience (“some people [are] so wary of [the fake cliff black carpet] that when we have to get them on the elevator to take them somewhere, we put down a white towel or something to cover it up”) is just…WHAT.

I’d like to ask everyone commenting about how awful this is: Have you ever been a caregiver of someone with dementia? If not, STFU. It’s not about convenience, it’s about safety. My grandmother, whom we cared for at home for 6 years, would wander out of the house. She broke her hip and gave herself a concussion, because she missed the slight step out of the front door. She would routinely get out of soft restraints, and clamber out of her hospital bed, leading to injury, because for a while, she also had a catheter in, and she would pull it out. She developed seizures because of the Alzheimer’s, and had diabetes, high blood pressure, and balance problems. She also, due to terror induced by the audiovisual hallucinations she had as the Alzheimer’s progressed, became violent. She attacked me with a kitchen knife, and could very well have injured HERSELF.

Trying to prevent people with dementia from wandering off, is is NO WAY, about convenience. When people with dementia wander off, they often end up dead. So, please - if you haven’t ever had to care for a person with dementia, do your fucking research. This isn’t a trick, for the convenience of carers, or staff, this is a safety measure, and it’s one that tries to be minimally disruptive to the person with dementia. Rather than trying to convince them of reality, which is often extremely distressing for them, if they have lucid periods, or putting them in restraints, these measures create boundaries that let the person restrain themselves. 

Even with it being for safety, this is still hugely problematic. Messing with the mind of the mentally ill or someone with dementia, for ANY REASON is screwed up and the ethics of it are very suspect.

You’re making their grasp on reality even more difficult to maintain when you do this and it has a level of cruelty to it that is not okay. I know that I would respond very badly to people attempting to take advantage of my mental disabilities and mental illness to control me and it would certainly impact how I handle the world.

I won’t paint every method like this with a broad brush but to assume that this is ethical just cuz it boosts safety? No. Not even remotely okay. Lots of horrible things boost safety. That is lazy thinking.

I’m both against this and for this, probably because i’m into neuro, specifically with studies done on Alzheimer’s patients. And this probably wasn’t a legitimate study, but the information found through it is fascinating. Babies will do the same thing, you see, avoiding a black space on the floor because they think it’s a hole. It’s just interesting how the mind works in that more progressive stages of Alz.

(Source: oversets)

  1. pannaem reblogged this from abbyjean
  2. algolagnickitten reblogged this from genderbitch
  3. numberninedream reblogged this from depressingfacts
  4. ladylikeposture reblogged this from crunkinpublic and added:
    Thank goodness for creativity
  5. nicocoer reblogged this from genderbitch and added:
    To privilege Denying Care giver: actually, yes I have. I have cared for a relative with these issues. I’ve also listened...
  6. functionalrecuperation reblogged this from crunkinpublic
  7. crunkinpublic reblogged this from oversets
  8. genderbitch reblogged this from gangsofcats-withthumbs and added:
    I’m not one to say difficult choices can’t be made. I’m saying there needs to be better ways, that what’s being done...
  9. gangsofcats-withthumbs reblogged this from genderbitch and added:
    As much as I agree with you on a lot of things genderbitch, i canT agree with you here. Abled caretakers have certain...
  10. iampurplemontart reblogged this from depressingfacts and added:
    I agree, it’s safer for everyone.
  11. sillinesses reblogged this from depressingfacts and added:
    http://www.youtube.com/watch?v=9iXPHhfk_7E&feature=player_embedded I can’t embed the video here, but people need to...
  12. carnivaloftherandom reblogged this from genderbitch and added:
    Dementia isn’t a mental illness. It is a degenerative neurological disease, in which the brain is slowly deconstructed...
  13. depressingfacts reblogged this from genderbitch and added:
    Safety for society anyone? People with dementia not only pose a risk for themselves but also other people if they wander...
  14. brogigayo reblogged this from genderbitch and added:
    this is so fucked up…
  15. robotghost reblogged this from genderbitch and added:
    I’m both against...and for this, probably because i’m into neuro, specifically with...
  16. sqweak reblogged this from carnivaloftherandom
  17. jadedhippy reblogged this from ouyangdan
  18. shaggii-murder reblogged this from shinyfuckingcurls
  19. oversets posted this